The dementia care study (D-CARE): Recruitment strategies and demographic characteristics of participants in a pragmatic randomized trial of dementia care

Mia Yang; Rafael Samper Ternent; Elena Volpi; Aval Na Ree Green; Maya Lichtenstein; Katy Araujo; Pamela Borek; Peter Charpentier; James Dziura; Thomas M. Gill; Rebecca Galloway; Erich J. Greene; Kristin Lenoir; Peter Peduzzi; Can Meng; Jordan Reese; Amy Shelton; Eleni A. Skokos; Jenny Summapund; Erin Unger; David B. Reuben; Jeff D. Williamson; Alan B. Stevens

doi:10.1002/alz.13698

The dementia care study (D-CARE): Recruitment strategies and demographic characteristics of participants in a pragmatic randomized trial of dementia care

Mia Yang, Rafael Samper Ternent, Elena Volpi, Aval Na Ree Green, Maya Lichtenstein, Katy Araujo, Pamela Borek, Peter Charpentier, James Dziura, Thomas M. Gill, Rebecca Galloway, Erich J. Greene, Kristin Lenoir, Peter Peduzzi, Can Meng, Jordan Reese, Amy Shelton, Eleni A. Skokos, Jenny Summapund, Erin UngerDavid B. Reuben, Jeff D. Williamson, Alan B. Stevens

Research output: Contribution to journal › Article › peer-review

Abstract

INTRODUCTION: Pragmatic research studies that include diverse dyads of persons living with dementia (PLWD) and their family caregivers are rare. METHODS: Community-dwelling dyads were recruited for a pragmatic clinical trial evaluating three approaches to dementia care. Four clinical trial sites used shared and site-specific recruitment strategies to enroll health system patients. RESULTS: Electronic health record (EHR) queries of patients with a diagnosis of dementia and engagement of their clinicians were the main recruitment strategies. A total of 2176 dyads were enrolled, with 80% recruited after the onset of the pandemic. PLWD had a mean age of 80.6 years (SD 8.5), 58.4% were women, and 8.8% were Hispanic/Latino, and 11.9% were Black/African American. Caregivers were mostly children of the PLWD (46.5%) or spouses/partners (45.2%), 75.8% were women, 9.4% were Hispanic/Latino, and 11.6% were Black/African American. DISCUSSION: Health systems can successfully enroll diverse dyads in a pragmatic clinical trial.

Original language	English (US)
Pages (from-to)	2575-2588
Number of pages	14
Journal	Alzheimer's and Dementia
Volume	20
Issue number	4
DOIs	https://doi.org/10.1002/alz.13698
State	Published - Apr 2024

Keywords

caregivers
dementia care
pragmatic clinical trials
recruitment

ASJC Scopus subject areas

Epidemiology
Health Policy
Developmental Neuroscience
Clinical Neurology
Geriatrics and Gerontology
Cellular and Molecular Neuroscience
Psychiatry and Mental health

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10.1002/alz.13698

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Yang, M., Samper Ternent, R., Volpi, E., Green, A. N. R., Lichtenstein, M., Araujo, K., Borek, P., Charpentier, P., Dziura, J., Gill, T. M., Galloway, R., Greene, E. J., Lenoir, K., Peduzzi, P., Meng, C., Reese, J., Shelton, A., Skokos, E. A., Summapund, J., ... Stevens, A. B. (2024). The dementia care study (D-CARE): Recruitment strategies and demographic characteristics of participants in a pragmatic randomized trial of dementia care. Alzheimer's and Dementia, 20(4), 2575-2588. https://doi.org/10.1002/alz.13698

Yang, M, Samper Ternent, R, Volpi, E, Green, ANR, Lichtenstein, M, Araujo, K, Borek, P, Charpentier, P, Dziura, J, Gill, TM, Galloway, R, Greene, EJ, Lenoir, K, Peduzzi, P, Meng, C, Reese, J, Shelton, A, Skokos, EA, Summapund, J, Unger, E, Reuben, DB, Williamson, JD & Stevens, AB 2024, 'The dementia care study (D-CARE): Recruitment strategies and demographic characteristics of participants in a pragmatic randomized trial of dementia care', Alzheimer's and Dementia, vol. 20, no. 4, pp. 2575-2588. https://doi.org/10.1002/alz.13698

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abstract = "INTRODUCTION: Pragmatic research studies that include diverse dyads of persons living with dementia (PLWD) and their family caregivers are rare. METHODS: Community-dwelling dyads were recruited for a pragmatic clinical trial evaluating three approaches to dementia care. Four clinical trial sites used shared and site-specific recruitment strategies to enroll health system patients. RESULTS: Electronic health record (EHR) queries of patients with a diagnosis of dementia and engagement of their clinicians were the main recruitment strategies. A total of 2176 dyads were enrolled, with 80% recruited after the onset of the pandemic. PLWD had a mean age of 80.6 years (SD 8.5), 58.4% were women, and 8.8% were Hispanic/Latino, and 11.9% were Black/African American. Caregivers were mostly children of the PLWD (46.5%) or spouses/partners (45.2%), 75.8% were women, 9.4% were Hispanic/Latino, and 11.6% were Black/African American. DISCUSSION: Health systems can successfully enroll diverse dyads in a pragmatic clinical trial.",

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year = "2024",

month = apr,

doi = "10.1002/alz.13698",

language = "English (US)",

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T2 - Recruitment strategies and demographic characteristics of participants in a pragmatic randomized trial of dementia care

AU - Yang, Mia

AU - Samper Ternent, Rafael

AU - Volpi, Elena

AU - Green, Aval Na Ree

AU - Lichtenstein, Maya

AU - Araujo, Katy

AU - Borek, Pamela

AU - Charpentier, Peter

AU - Dziura, James

AU - Gill, Thomas M.

AU - Galloway, Rebecca

AU - Greene, Erich J.

AU - Lenoir, Kristin

AU - Peduzzi, Peter

AU - Meng, Can

AU - Reese, Jordan

AU - Shelton, Amy

AU - Skokos, Eleni A.

AU - Summapund, Jenny

AU - Unger, Erin

AU - Reuben, David B.

AU - Williamson, Jeff D.

AU - Stevens, Alan B.

PY - 2024/4

Y1 - 2024/4

N2 - INTRODUCTION: Pragmatic research studies that include diverse dyads of persons living with dementia (PLWD) and their family caregivers are rare. METHODS: Community-dwelling dyads were recruited for a pragmatic clinical trial evaluating three approaches to dementia care. Four clinical trial sites used shared and site-specific recruitment strategies to enroll health system patients. RESULTS: Electronic health record (EHR) queries of patients with a diagnosis of dementia and engagement of their clinicians were the main recruitment strategies. A total of 2176 dyads were enrolled, with 80% recruited after the onset of the pandemic. PLWD had a mean age of 80.6 years (SD 8.5), 58.4% were women, and 8.8% were Hispanic/Latino, and 11.9% were Black/African American. Caregivers were mostly children of the PLWD (46.5%) or spouses/partners (45.2%), 75.8% were women, 9.4% were Hispanic/Latino, and 11.6% were Black/African American. DISCUSSION: Health systems can successfully enroll diverse dyads in a pragmatic clinical trial.

AB - INTRODUCTION: Pragmatic research studies that include diverse dyads of persons living with dementia (PLWD) and their family caregivers are rare. METHODS: Community-dwelling dyads were recruited for a pragmatic clinical trial evaluating three approaches to dementia care. Four clinical trial sites used shared and site-specific recruitment strategies to enroll health system patients. RESULTS: Electronic health record (EHR) queries of patients with a diagnosis of dementia and engagement of their clinicians were the main recruitment strategies. A total of 2176 dyads were enrolled, with 80% recruited after the onset of the pandemic. PLWD had a mean age of 80.6 years (SD 8.5), 58.4% were women, and 8.8% were Hispanic/Latino, and 11.9% were Black/African American. Caregivers were mostly children of the PLWD (46.5%) or spouses/partners (45.2%), 75.8% were women, 9.4% were Hispanic/Latino, and 11.6% were Black/African American. DISCUSSION: Health systems can successfully enroll diverse dyads in a pragmatic clinical trial.

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The dementia care study (D-CARE): Recruitment strategies and demographic characteristics of participants in a pragmatic randomized trial of dementia care

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