TY - JOUR
T1 - Reliability of measurements of patient health status
T2 - A comparison of physician, patient, and caregiver ratings
AU - McRae, Cynthia
AU - Diem, Gretchen
AU - Vo, Alexander
AU - O'Brien, Christopher
AU - Seeberger, Lauren
N1 - Funding Information:
This research was supported in part by a grant from the National Institute of Neurological Disorders and Stroke (R29 NS32009-04). We would like to thank Carrie Cerreta, Tami Miller, Christi Neville, and Marcia Smith for their help with data collection, Dan Russell for his help with data analyses, and Don Shek for his help with data management. Drs O’Brien and Seeberger received support from the National Parkinson Foundation as participants in a Center of Excellence.
PY - 2002
Y1 - 2002
N2 - The purpose of this preliminary study was to investigate the inter-rater reliability among physician, patient, and caregiver ratings on the Hoehn & Yahr (H & Y) and Schwab & England (S & E) rating instruments. We also examined differences in ratings between patients who attended clinic with and without caregivers (spouses and adult children). Patients and caregivers coming for an appointment at Colorado Neurological Institute were asked to independently complete the H & Y and S & E scales. Physicians rated the patients during the exam. In the group of patients who came to clinic with caregivers, there was significant agreement on both the H & Y and S & E (P<0.001). For patients not accompanied by caregivers, patients rated themselves as more debilitated on the S & E than physicians (P<0.001). Patients without caregivers rated themselves as more functional than patients with caregivers on both scales (P<0.001). Physicians also rated patients without caregivers as more functional on both scales (P<0.001). Results indicated there was consistency among ratings of physicians and patients accompanied by caregivers on both scales. Patients attending clinic alone rated themselves as worse on the S & E than physicians. Patients alone were rated as more functional than patients accompanied by caregivers on both scales regardless of rater.
AB - The purpose of this preliminary study was to investigate the inter-rater reliability among physician, patient, and caregiver ratings on the Hoehn & Yahr (H & Y) and Schwab & England (S & E) rating instruments. We also examined differences in ratings between patients who attended clinic with and without caregivers (spouses and adult children). Patients and caregivers coming for an appointment at Colorado Neurological Institute were asked to independently complete the H & Y and S & E scales. Physicians rated the patients during the exam. In the group of patients who came to clinic with caregivers, there was significant agreement on both the H & Y and S & E (P<0.001). For patients not accompanied by caregivers, patients rated themselves as more debilitated on the S & E than physicians (P<0.001). Patients without caregivers rated themselves as more functional than patients with caregivers on both scales (P<0.001). Physicians also rated patients without caregivers as more functional on both scales (P<0.001). Results indicated there was consistency among ratings of physicians and patients accompanied by caregivers on both scales. Patients attending clinic alone rated themselves as worse on the S & E than physicians. Patients alone were rated as more functional than patients accompanied by caregivers on both scales regardless of rater.
KW - Measurement reliability
KW - Parkinson's disease
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U2 - 10.1016/S1353-8020(01)00009-8
DO - 10.1016/S1353-8020(01)00009-8
M3 - Article
C2 - 12039430
AN - SCOPUS:0036131888
SN - 1353-8020
VL - 8
SP - 187
EP - 192
JO - Parkinsonism and Related Disorders
JF - Parkinsonism and Related Disorders
IS - 3
ER -