Nursing Home Stakeholder Views of Resident Involvement in Medical Care Decisions

Theresa J. Garcia, Tracie C. Harrison, James S. Goodwin

Research output: Contribution to journalArticlepeer-review

9 Scopus citations


Demand by nursing home residents for involvement in their medical care, or, patient-centered care, is expected to increase as baby boomers begin seeking long-term care for their chronic illnesses. To explore the needs in meeting this proposed demand, we used a qualitative descriptive method with content analysis to obtain the joint perspective of key stakeholders on the current state of person-centered medical care in the nursing home. We interviewed 31 nursing home stakeholders: 5 residents, 7 family members, 8 advanced practice registered nurses, 5 physicians, and 6 administrators. Our findings revealed constraints placed by the long-term care system limited medical involvement opportunities and created conflicting goals for patient-centered medical care. Resident participation in medical care was perceived as low, but important. The creation of supportive educational programs for all stakeholders to facilitate a common goal for nursing home admission and to provide assistance through the long-term care system was encouraged.

Original languageEnglish (US)
Pages (from-to)712-728
Number of pages17
JournalQualitative Health Research
Issue number5
StatePublished - Apr 1 2016


  • decision making
  • health care, long-term
  • health care, users' experiences
  • holistic care
  • illness and disease, chronic
  • research, qualitative

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health


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