Infant with trisomy 18 and hypoplastic left heart syndrome

Stephanie Kukora; Janice Firn; Naomi Laventhal; Christian Vercler; Bryanna Moore; John D. Lantos

doi:10.1542/peds.2018-3779

Infant with trisomy 18 and hypoplastic left heart syndrome

Stephanie Kukora, Janice Firn, Naomi Laventhal, Christian Vercler, Bryanna Moore, John D. Lantos

Research output: Contribution to journal › Article › peer-review

6 Scopus citations

Abstract

We present a case in which a fetal diagnosis of complex congenital heart disease and trisomy 18 led to a series of decisions for an infant who was critically ill. The parents wanted everything done. The surgeons believed that surgery would be futile. The parents publicized the case on social media, which led to publicity and pressure on the hospital. The case reveals the intersection of parental values, clinical judgments, ethics consultation, insurance company decisions about reimbursement, and social media publicity. Together, these factors complicate the already delicate ethical deliberations and decisions.

Original language	English (US)
Article number	Y
Journal	Pediatrics
Volume	143
Issue number	5
DOIs	https://doi.org/10.1542/peds.2018-3779
State	Published - May 2019
Externally published	Yes

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health

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10.1542/peds.2018-3779

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abstract = "We present a case in which a fetal diagnosis of complex congenital heart disease and trisomy 18 led to a series of decisions for an infant who was critically ill. The parents wanted everything done. The surgeons believed that surgery would be futile. The parents publicized the case on social media, which led to publicity and pressure on the hospital. The case reveals the intersection of parental values, clinical judgments, ethics consultation, insurance company decisions about reimbursement, and social media publicity. Together, these factors complicate the already delicate ethical deliberations and decisions.",

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AU - Vercler, Christian

AU - Moore, Bryanna

AU - Lantos, John D.

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AB - We present a case in which a fetal diagnosis of complex congenital heart disease and trisomy 18 led to a series of decisions for an infant who was critically ill. The parents wanted everything done. The surgeons believed that surgery would be futile. The parents publicized the case on social media, which led to publicity and pressure on the hospital. The case reveals the intersection of parental values, clinical judgments, ethics consultation, insurance company decisions about reimbursement, and social media publicity. Together, these factors complicate the already delicate ethical deliberations and decisions.

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Infant with trisomy 18 and hypoplastic left heart syndrome

Abstract

ASJC Scopus subject areas

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