Factors Impacting the Decision of an Individual With Lynch Syndrome to Terminate a Health Care Provider Relationship

Erin M. Broughel; Kelsey Hennig; Rebecca Chu; Wendy M. Parker; Lisa Campo-Engelstein; Allison M. Burton-Chase

doi:10.1177/23743735211008755

Factors Impacting the Decision of an Individual With Lynch Syndrome to Terminate a Health Care Provider Relationship

Erin M. Broughel, Kelsey Hennig, Rebecca Chu, Wendy M. Parker, Lisa Campo-Engelstein, Allison M. Burton-Chase

Bioethics

Research output: Contribution to journal › Article › peer-review

Abstract

Lynch syndrome (LS) is a genetic cancer syndrome that puts affected individuals at a significantly higher risk of developing multiple cancers. Participants (n = 57) were recruited through social media. Data were collected through online surveys and phone interviews; the interview data (n = 55) were analyzed to identify provider terminations and the factors that motivated these decisions. Results indicate that individuals with LS terminated their patient–provider relationships due to lack of provider LS knowledge, poor interactions, or a combination of both factors. Findings from this study suggest a need for better interactions between LS patients and providers and increased knowledge of LS-specific care.

Original language	English (US)
Journal	Journal of Patient Experience
Volume	8
DOIs	https://doi.org/10.1177/23743735211008755
State	Published - 2021

Keywords

Lynch syndrome
Lynch syndrome knowledge
patient–provider communication
patient–provider relationships
termination of health care provider relationships

ASJC Scopus subject areas

Health(social science)
Health Policy
Leadership and Management

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title = "Factors Impacting the Decision of an Individual With Lynch Syndrome to Terminate a Health Care Provider Relationship",

abstract = "Lynch syndrome (LS) is a genetic cancer syndrome that puts affected individuals at a significantly higher risk of developing multiple cancers. Participants (n = 57) were recruited through social media. Data were collected through online surveys and phone interviews; the interview data (n = 55) were analyzed to identify provider terminations and the factors that motivated these decisions. Results indicate that individuals with LS terminated their patient–provider relationships due to lack of provider LS knowledge, poor interactions, or a combination of both factors. Findings from this study suggest a need for better interactions between LS patients and providers and increased knowledge of LS-specific care.",

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AU - Broughel, Erin M.

AU - Hennig, Kelsey

AU - Chu, Rebecca

AU - Parker, Wendy M.

AU - Campo-Engelstein, Lisa

AU - Burton-Chase, Allison M.

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PY - 2021

Y1 - 2021

N2 - Lynch syndrome (LS) is a genetic cancer syndrome that puts affected individuals at a significantly higher risk of developing multiple cancers. Participants (n = 57) were recruited through social media. Data were collected through online surveys and phone interviews; the interview data (n = 55) were analyzed to identify provider terminations and the factors that motivated these decisions. Results indicate that individuals with LS terminated their patient–provider relationships due to lack of provider LS knowledge, poor interactions, or a combination of both factors. Findings from this study suggest a need for better interactions between LS patients and providers and increased knowledge of LS-specific care.

AB - Lynch syndrome (LS) is a genetic cancer syndrome that puts affected individuals at a significantly higher risk of developing multiple cancers. Participants (n = 57) were recruited through social media. Data were collected through online surveys and phone interviews; the interview data (n = 55) were analyzed to identify provider terminations and the factors that motivated these decisions. Results indicate that individuals with LS terminated their patient–provider relationships due to lack of provider LS knowledge, poor interactions, or a combination of both factors. Findings from this study suggest a need for better interactions between LS patients and providers and increased knowledge of LS-specific care.

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Factors Impacting the Decision of an Individual With Lynch Syndrome to Terminate a Health Care Provider Relationship

Abstract

Keywords

ASJC Scopus subject areas

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