TY - JOUR
T1 - Development and electronic validation of the revised Cystic Fibrosis Questionnaire (CFQ-R Teen/Adult)
T2 - New tool for monitoring psychosocial health in CF
AU - Solé, Amparo
AU - Olveira, Casilda
AU - Pérez, Ines
AU - Hervás, David
AU - Valentine, Vincent
AU - Baca Yepez, Anick N.
AU - Olveira, Gabriel
AU - Quittner, Alexandra L.
N1 - Publisher Copyright:
© 2017
PY - 2018/9
Y1 - 2018/9
N2 - Background: The Cystic Fibrosis Questionnaire-Revised (CFQ-R + 14) is a disease-specific, health-related quality of life instrument for cystic fibrosis (CF) patients ≥ 14 years. We have developed a Spanish electronic version of the CFQ-R (e-CFQ-R + 14 Spain). Our aim was to compare the paper and electronic versions and to validate the electronic version. Methods: Fifty CF patients completed the study. All answered the paper and electronic versions on day 1 and repeated the e-CFQR version 15 days later. Results: Concordance between the electronic and paper copy versions was high, with correlations above 0.9 in all domains. Test-retest reliability of the e-CFQ-R results was strong, with coefficients ranging from 0.8 to 0.9. Conclusions: The e-CFQ-R version is reliable and valid and can replace the paper copy, thus simplifying the assessment of quality of life. It also provides immediate results with no errors in scoring. It is a useful new tool in CF care.
AB - Background: The Cystic Fibrosis Questionnaire-Revised (CFQ-R + 14) is a disease-specific, health-related quality of life instrument for cystic fibrosis (CF) patients ≥ 14 years. We have developed a Spanish electronic version of the CFQ-R (e-CFQ-R + 14 Spain). Our aim was to compare the paper and electronic versions and to validate the electronic version. Methods: Fifty CF patients completed the study. All answered the paper and electronic versions on day 1 and repeated the e-CFQR version 15 days later. Results: Concordance between the electronic and paper copy versions was high, with correlations above 0.9 in all domains. Test-retest reliability of the e-CFQ-R results was strong, with coefficients ranging from 0.8 to 0.9. Conclusions: The e-CFQ-R version is reliable and valid and can replace the paper copy, thus simplifying the assessment of quality of life. It also provides immediate results with no errors in scoring. It is a useful new tool in CF care.
KW - Cystic Fibrosis Questionnaire Revised
KW - Cystic fibrosis
KW - Diagnostic tool
KW - Patient reported outcomes
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U2 - 10.1016/j.jcf.2017.10.015
DO - 10.1016/j.jcf.2017.10.015
M3 - Article
AN - SCOPUS:85034059969
SN - 1569-1993
VL - 17
SP - 672
EP - 679
JO - Journal of Cystic Fibrosis
JF - Journal of Cystic Fibrosis
IS - 5
ER -